Christmas cheer for Camryn - Republic-Times | News

Christmas cheer for Camryn

By on December 19, 2018 at 2:50 pm

Pictured, from left, Lindsay, Adam, Camryn and Camryn’s brother Cayle Coughlin visit Santa Claus at the conclusion of Sunday’s parade. (James “Tal” Moss photo)

As the carolers approached, tears welled up in the eyes of Lindsay Coughlin while her husband, Adam, wiped tears from his own eyes.

That was the scene Sunday afternoon as hundreds of community members gathered to surprise the Coughlin family with a special holiday parade.  

“It was emotional,” Adam said of the event. “I had no idea. I know that the folks who organized it went to great lengths to keep it a secret from us and they definitely succeeded.” 

The parade was primarily for Adam and Lindsay’s son, Camryn. 

Late last year, the 8-year-old was diagnosed with adrenoleukodystrophy, a rare genetic disorder that destroys the protective sheath surrounding the nerve cells that allow people to think and to control their muscles.

There is no known cure for the disease, but the family was able to get a bone marrow transplant from Adam to attempt to stop the progression of the disease.

The type of transplant Camryn received was risky, but the Coughlins were part of a clinical trial that made it safer.

Even so, about two months ago the family learned the transplant was unsuccessful. 

“Unfortunately, it didn’t get to where it needs to go fast enough and the disease is still progressing,” Adam said. 

Camryn is now on palliative care. A typical timetable for the fatal disease’s progression is 2-5 years. 

So, to help lift the Coughlin family’s spirits, local first responders, friends, teachers and more threw a surprise parade.

Read the rest of the story in the December 19, 2018, newspaper.

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James Moss